My latest mental health journey

For those of you that don’t know, I created this digital magazine after being diagnosed with bipolar disorder, when I was 21 years old. I’m now 36 and all this journey down the line have taught me to stay humble, work in silence, connected with my true self and whole. Easier said than done right?

I developed breathing problems during the pandemic (I have a deviated septum on my nose and sinusitis and rhinitis is basically my modus operandis). When you mix severe anxiety with bipolar you are leaning into a cocktail of problems: in your discourse when you’re about to be hospitalised and your broader well-being when you’re already discharged.

As for me, I’ve been on a mental yard three times in my life and I was five weeks on the last one (spending there Christmas and New Year’s Eve). I won’t play the victim card because I know it was my fault and what put me there in the first place.

Lately, I do mental evaluations regularly, as my process belongs now to the Court, attached to the Law of Mental Disease, here in Portugal. It’s exhausting to feel examined as thoroughly and sometimes, I dare to say, in a way that makes you feel completely powerless.

I’ve had post traumatic stress disorder, phobias and panic attacks lately that I’ve yet to address in a proper setting, in a psychiatry appointment.

It’s just harsh mentally to receive letters with people’s perceptions of you, no matter how accurate they may be. It comes to me the book “The four agreements” by Don Miguel Ruiz and it makes me find some peace within myself when he writes “Never take rushed conclusions” and “Don’t take anything personally”.

No matter how unconfortable I may feel, how sorry, how ashamed, I know I have the power inside of me to make a change and that is nourishing to me and to my soul.

Paula Gouveia

 

 

Foto de Ahmad Odeh na Unsplash

“Mitigate the mental health crisis by providing mental health services in schools”

 

I didn’t come up with the title of this article. It’s actually the name of the campaign launched by actress, singer, producer, entrepreneur and philanthropist Selena Gomez last May, which was mental awareness month. Her beauty brand, Rare Beauty, released a campaign centered around the idea: “What if mental health was taught in school?”

“Mental Health is personal for me. Figuring out how to manage my own mental health hasn’t always been easy, but it’s something I am constantly working on. I hope I can help others work on it, too. I wish more people talked about mental health when I was younger, so I could have learned and understood what was going on with my own health earlier on”, wrote Selena in the presentation of this initiative.

 

Photo of Selena Gomez, Rare Beauty founder, on the petition site: change.org/mentalhealth101

 

The statics, provided by a Rare Beauty research, are deeply concerning:

 

❖ Suicide is the second leading cause of death in the Gen Z community (the generation reaching adulthood in the second decade of the 21st century according to the Oxford Dictionary)

❖ One-half of all chronic mental illness begins by the age of 14; three-quarters by the age of 24.

❖ Only 16% of all children receive mental health assistance in school environments where they spend the majority of their waking hours.

❖ In recent years, only 1.3% of overall philanthropic investments went to support mental health.

 

What can we do to address this ever growing problem? Rare Beauty has a key answer: offer mental health services in schools, the same way subjects like Maths, Science, History or Physical Education (PE) are. Hence this petition, created to bring awareness to the cause and make the philanthropy community prioritize the issue: “Your signature will show them just how urgent this issue is” emphasizes Selena Gomez.

“At Rare Beauty, we believe that learning about mental health is just as important as any other subject in school. That’s why, in honor of Mental Awareness Month, we’re launching the Mental Health 101 campaign. Mental Health 101 advocates for more mental health in education, empowers our community and encourages financial support for more mental health services in education settings” states the brand in the press release of this project.

In challenging times like those we are facing today, it’s more urgent than ever to raise funds to increase access to mental health services such as social and emotional learning, mental health trainings for educators and school professionals, and suicide prevention and crisis response services.

Selena Gomez urges everyone to embrace this cause, that simply can’t afford to wait: “I hope by sharing my own story and using my brand and platform to talk about mental health, I can encourage others to get the help they need, and make sure they have access to more mental health services”.

Like Rare Beauty states, I believe national and local government alone won’t solve the mental health crisis that the world faces today. It’s up to regular citizens like us to show that we care and that this issue matters in our hearts and minds by signing this campaign, sharing the campaign toolkit or donating to the Rare Impact Fund, if possible. (Rare Beauty will be matching $200,000 of donations)

Rare Beauty aims to live up to the motto of its founder, Selena Gomez ” ​I think Rare Beauty can be more than a beauty brand—it can make an impact. I want us all to stop comparing ourselves to each other and just start embracing our own uniqueness”.

Paula Gouveia

 

Rare Impact Mental Health 101 – Stat References

❖ Suicide is the second leading cause of death in the Gen Z community according to the CDC (as cited in
Business Insider, 2019).
Kiersz, A. Akhtar, A. (2019, October 19). Suicide is Gen Z’s second-leading cause of death, and it’s a worse epidemic than anything millennials faced at that age.

Business Insider:  https://www.businessinsider.com/cdc-teenage-gen-z-american-suicide-epidemic

❖ 1 in 5 adults experience a mental illness each year according to results from the National Survey on Drug
Use and Health (as cited by NAMI, 2021) and many say this number will increase by the time COVID-19 is
over.

National Alliance on Mental Illness (2021, March). Mental Health By the Numbers:

https://www.nami.org/mhstats

Kaiser Family Foundation (2021, February 10). The Implications of COVID-19 for Mental Health and Substance Use:

https://www.kff.org/coronavirus-covid-19/issue-brief/the-implications-of-covid-19-for-mental-health-and-substance-use/

❖ In a recent report by the American Psychological Association, 7 out of 10 Gen Zers (ages 8-23) were most
likely to report experiencing common symptoms of depression—with pre-teens and teens having the
highest rate of suicide ideations as compared to other age groups, according to the Annual State of
Health in America (as cited in USA Today, 2021).

American Psychological Association (2020, October). Stress in America™ 2020: A National Mental Health Crisis:

https://www.apa.org/news/press/releases/stress/2020/report-october

Franklin, K. Gerstenhaber, K. (2021, February 7). In COVID’s wake, we need a mandatory health curriculum in schools. USA Today.

https://amp-usatoday-com.cdn.ampproject.org/c/s/amp.usatoday.com/amp/4260049001

❖ One-half of all chronic mental illness begins by the age of 14; three-quarters by the age of 24, according
to the National Institute of Mental Health (as cited by the CDC, 2018).
Centers for Disease Control and Prevention. (2018)

 

Learn About Mental Health. U.S. Department of Health & Human Services:

https://www.cdc.gov/mentalhealth/learn/index.htm

❖ Only 16% of all children receive mental health assistance in school environments where they spend the
majority of their waking hours, according to research by Clinical Child & Family Psychology Review and
Health Affairs (as cited in USA Today, 2021).

https://amp-usatoday-com.cdn.ampproject.org/c/s/amp.usatoday.com/amp/4260049001

❖ In recent years, only 1.3% of overall philanthropic investments went to support mental health, according
to data from CANDID developed by the Center for High Impact Philanthropy (as cited in Inside
Philanthropy, 2020)

Zimmerman, K. (2020, June 29). Mental Health Needs to Be a Top Priority for Philanthropy. Here’s Why. Inside Philanthropy

https://www.insidephilanthropy.com/home/2020/6/28/more-than-ever-mental-health-needs-to-a-top-priority-for-philanthropy-heres-why#

 

Hashtags:
#MentalHealth101
#RareImpact

Links to learn more:
Rare Impact Go Fund Me: https://www.gofundme.com/f/rareimpactfund
Sign the petition: change.org/mentalhealth101

Mental Health 101 Campaign Page:
https://www.rarebeauty.com/blogs/news/mental-health-101
Rare Impact Landing Page: https://www.rarebeauty.com/pages/rare-impact

Rare Beauty Social Handles
Instagram: @rarebeauty
Twitter: @rarebeauty
Facebook: Rare Beauty
LinkedIn: Rare Beauty
YouTube: @RareBeauty
TikTok: @rarebeauty
Pinterest: @rarebeautyofficial

Interview Xylo Aria “I think it’s more important than ever to connect to people”

 

I discovered the work of Xylo Aria through a free master class on music production, which was nothing short of a serendipity intervention. Singer, producer and entrepreneur, Xylo Aria transcends any boundaries and is now using all her music expertise to help other women produce their own songs. She is the founder of MPW (Music Production For Women) which has a You Tube channel and a podcast in the streaming platforms.

I was immediately captivated by her artistry in songs that speak about the way we treat our planets, our animals and each other.

We talked via online call at the beginning of the lockdown about self care, the healing power of music and the fascinating world of female music production.

 

1_ Could you tell us a little bit of your upbringing and early music experiences?

I was born in India, so I have an Indian background and then I moved to Australia when I was about seven years old, with my family. So, we all moved together and I was in Melbourne. Three years ago I moved to the UK, I was in London, and just recently moved back to Australia actually. I moved back just before the Coronavirus. I’m a musician, I started singing when I was really young from India as well and I was taught by my grandma at first and that kind of evolved. I started with more traditional Indian music but then I got into more electronic stuff as I went along and now I’m in electronic downtempo music.

2_ How do you think music intersects with self care and do you think it can be like a therapy for the soul?

Definitely. Especially if you’re having a really tough time like emotionally and you’re going through something, I think music is such a great outlet to let go of these feelings in a new and creative way. And also, when you’re really happy, but for me it happens more often, I guess, when I’m sad and I think for a lot of others. But I think it’s a great way to express and let go of something that is a really intense time for you.

3_ Could you talk, in your catalogue of music, about some of your songs like “Paradigm”, “Awakening” and “Pig”? Did you want to do a sort of social commentary or convey a message? Can you highlight some of these songs and the process of creating them?

So I think for me, music is another medium to communicate to people. I think it’s really important to talk about things you really care about and for me a lot of that is environmental things and just how to be a little more aware as species of the world and the impact that we’re having in the world we’re living in. It’s always something that’s been in the back of my mind to talk about through my music. “Pig” was actually the first track that I released myself and produced myself, it’s about industrial meat farming, it’s about just that from the perspective of an animal. It’s pretty intense actually if you listen to the lyrics and that was kind of my commentary on that issue. Another track I released last year, it was called “Greed”, and that’s about over consumption in society today, greed essentially, and I actually have a song on my last EP called “Consumerism” which is exactly about that, just a need to consume way more that we probably need to. There are some issues that are close to my heart that I speak about when I need to.

4_ How has the Coronavirus changed your approach to art general and to life?

Well, to art, I’m a solo artist anyway but still it has become a lot more solo during this time. You are not really going out, gigging or performing in front of people so it’s a bit more disconnected, I would say, to a community. We blog but oftentimes is easy to feel very alone in the world with the lockdown and everything. I think it’s more important than ever to connect to people and reach out and talk to people that are close to you. And focusing more on deep meditation and in doing yoga and exercising every day is also healthy for sure.

5_ So, last question, I wanted you to talk about how you had the idea to create MPW and what do you intend to achieve with this community.

My big vision is for it to the first thing any woman thinks about when she wants to get into production because I want for it to be that nice and welcoming space for people to really feel like they belong. As an artist I always worked with other producers and for whatever reason it didn’t work out too well for me and I decided that I needed to produce my own music, that would be the way forward, and that felt like a very lonely process. For me it all came down to three main things, one is the teaching content that I was looking out when I was learning, it felt a little bit alienating in the sense people were moving really quickly and I didn’t really know what they were saying, they did not talk in very plain terms. Secondly, was the lack of community, I didn’t feel like I had a place where I could go and ask any questions and thirdly, the lack of visibility. I didn’t see anyone that looked like me producing music. So, with MPW it’s my aim to tackle all these three things. One of them is the teaching content, have it really conversational and easy to understand, secondly is having that really strong community where people feel comfortable  to ask whatever they want to ask and feel supported  in this space and the third thing is increasing visibility, so we have a podcast, we have a YouTube channel as well, where we’re increasing the amount of content by female producers. I hope that other young women coming into music production might be able to find this and see it as something they can aim to achieve.

Paula Gouveia

Information is the path to inclusion

 

My husband and I usually joke that we never do life in easy mode: we’re constantly doing more stuff than we should and most of the time with some pretty big difficulties along the way. When we had our son, Gonçalinho, we had just bought our first house. We dreamt of the day that we would bring him home and, for the first time, we didn’t expect any problems – we were healthy and the pregnancy was completely normal. However, a few hours only after our little sparrow – that’s what we call him – was born, everyone could tell that something was not quite right. He was severely hypotonic, extremely floppy and hypermobile. Life was not the same after that.

The road to a diagnosis ended up taking almost 12 months (Osteogenesis Imperfecta and Ehlers-Danlos Syndrome, two syndromes without a cure). We had already learned by then that he had severe allergies as well, reacting by ingestion, smell or contact and going into anaphylactic shock a few times. During this time, he was constantly getting hurt (joints, muscles and bones) and was developmentally delayed – e.g.: while other kids were already pulling to stand, he was still mastering how to sit upright. In order to help him achieve gross and fine motor skills, he started doing physiotherapy when he was 1 month old. Later on, we added occupational therapy, speech therapy, hydrotherapy and music therapy.

Our life completely changed. Our son was disabled and would need help to learn things that most kids do naturally. He fractured with minor trauma and subluxed while doing the tiniest of movements. I had to stop working, due to the amount of therapies that he had – at least two sessions every day. I went from having a team at work to being completely isolated at home, searching for the next thing that could help him develop “normally” and I became obsessed with information. Most special needs parents need to stop working, at least temporarily, to give their children the best care possible. Unfortunately, our government is not very flexible with special needs parents in terms of working conditions. I am very lucky to have colleagues and an employer that completely understand our situation, but most parents are not so lucky. Their employers or colleagues might feel that the parent is skipping responsibilities at work, when in reality most of them, sometimes, don’t even sleep in order to manage everything for their children.

Slowly, I started to understand that a lot of people would look at us with pity, like his disability was something wrong or a taboo, a burden even. Not a lot of people would understand when I tried to explain what he had, what he was going through. So I started writing to break down barriers, to show that having a disability doesn’t make you less worthy of a fulfilling life, to explain in easy terms what he has and to show all the parts of our life – the bad but also the good ones.
I got involved in several projects to help advance the knowledge about his diseases, anything from TV to writing articles to magazines.

I became an activist, so no other parent has to deal with this alone. I even created a community for parents of other children with specifics needs (www.facebook.com/groups/maespaiscuidadores), so we can all support each other. I also never lost touch with my professional life: during all this I completed another master’s degree and kept completing courses and getting certificates.

Nowadays, Gonçalo’s almost 3 years old. The biggest challenge we face is finding the perfect balance between letting him try new things that help him develop new abilities while at the same time protecting him from hurting himself. He still doesn’t walk or talk (he’s starting to say a few words). He still does therapies daily. He has to be monitored 24h/24h, since any activity can cause him to break a bone or get hurt in any other way (e.g.: one of his fractures happened because he didn’t seat correctly). It is very taxing to plan all his appointments – his daily therapies, his doctors’ appointments, medications, hospital stays, among a lot of other things; we keep a calendar just for him. It is also very difficult for me to deal with emotions at times, especially when he is going through a procedure, or he gets hurt. Luckily, most of the time I already know what to expect and how to prepare for what’s coming. I still am obsessed with information, but I try to share it in the community instead of spending hours at medical articles or any other source of information. I think that was my way of overcoming the obstacles faced – by learning as much as I could about my son’s conditions.

My mission is to educate. To promote a human conscience, instead of feeling sorry, ask “how can I help?”, ask parents for permission before feeding a child, for example, you never know if that child has an allergy or other invisible condition. To raise awareness that it is ok to have a disease, what is not ok is to be excluded because of it, especially when we talk about children. Indeed, “it takes a village to raise a child”. To make people understand that it is not easy at all to have a son with two rare diseases but it isn’t also the end of the world.

My motto is “information is the path to inclusion”, since we tend to fear and disregard what we don’t know; if we have access to information, the taboo is gone. I think my message for any parent going through a situation like this is that there are good days and bad days, we just have to make sure that the good ones surpass the bad ones so the balance is always positive.

Tânia Vargas

https://www.facebook.com/mundogoncalinho/

Seven lessons learned with Lady Gaga on Oprah 2020 Vision Tour Visionaries

 

At the beginning of this year, Oprah Winfrey, kicked of a tour to talk with some of the most fascinating figures in the United States of America. The singer and actress Lady Gaga was chosen to be part of a panel and she decided to address mental health, sharing her personal story and hoping to offer light to others facing similar hardships.

Here are seven take aways from the capitivating conversation:

1_ In order to heal, you have to feel. Lady Gaga reveals she has been dealing with a lot of pain for most of her adult life and she ultimately discovered she fibromaylgia, which was a response to the intense trauma she had been through after being raped at multiple times at age 19. In consequence of not processing this suffering properly she also developed PTST (Posttraumatic stress disorder) and began self harming. It was only when she hit a mental health crisis with a dissociative psychotic break, that she seeked help and assembled a team of professionals to assist in her recovery.Read more

Pain is universal: Three tips to make it through hard times

 

As cliché as it sounds everybody hurts. When life is not all sunshine and rainbows, we tend to think something is deeply wrong with us, we feel lonely like we aren’t a part of something bigger, like we are totally disconnected from the Universe. Like we are too damaged to ever be fixed, too broken to ever be healed, beyond any kind of redemption. Nothing could be further from the truth.Read more

A must watch: “Let there be light”

 

“Let there be light” is a documentary made by the famous filmmaker John Huston about a group of returning veterans from the war suffering from post-traumatic disorder, displayed in several nervous conditions.

Set on Mason General Hospital on Brentwood, Long Island, the largest mental health facility on the East Coast, the unscripted documentary aimed to help spread awareness about what was called “shell shock” and “psychoneurosis” at the time, break down the stigma and to prove that after mental instability brought by the war, those human beings were normal after psychiatric treatment and ready to rejoin society.

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How to cope with loss

 

Time and time again we are forced to jump through hurdles and face the bitter truth: that we just lost something that is unreplaceable: a relative, a friend, a lover, a place, a state of being. It can be either physical death or the death of a feeling, it doesn’t really matter. The end result is the same: a pounding in our chests, a pain that we can’t just shake off and sometimes a certainty that things will never change and that we will always be miserable and unhappy.Read more

What do we talk when we talk about mental health

 

The title of this post comes from the short story collection “What do we talk when we talk about love” by Raymond Carver.

In this day and age does it really make sense separate body from mind? Because mental health is not just scary illnesses or those that can be wrongly perceived as mere weaknesses. It’s also prevention, well-being practices and actively working as a society to reduce the stigma and be more inclusive.

When we talk about mental health it’s usually like an epidemic, with depression on the rise around the globe and becoming the leading cause of disability worldwide. Their numbers illustrate a worrisome reality: we can be busier than ever, we more information and resources in the tips of our fingers but that is not making us necessarily happier.

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